Caregivers often say that one of the hardest parts of dealing with dementia, Alzheimer’s and other memory loss is the absence of the normal interactions they once had in a couple or parent/child relationship. Instead, these days are full of difficult and tedious tasks.
Memory cafés are a break from the routine. They’re an informal place for caregivers and their loved ones to gather for conversation, companionship, games and activities, musical entertainment, perhaps, and an occasional outing. Some have an educational resources, such as an Alzheimer’s expert, but others are purely social.
More than anything, they aim to restore normalcy-and fun-to caregivers and their loved ones with mild cognitive impairment or early Alzheimer’s. The other obvious plus is that it’s a place to go where others are dealing with similar issues.
“What people say they love about the cafés,” says Lori La Bey, founder of the advocacy group Alzheimer’s Speaks and a facilitator at two memory cafes in the St. Paul/Minneapolis area, “is that it’s the one place to have fun and feel safe where they don’t have to apologize, be embarrassed or explain. They can have friends again and be a couple.”
Rather than focus on the disease or be a place to vent, cafés are an opportunity for caregivers and loved ones to do what they’re able, not unable, to do together. And that’s an important point.
The cafés may take place in a church, senior center, museum, hospital, public library, adult day care center or, yes, a real café. They typically last 1.5-2 hours and occur monthly, twice a month or more.
It’s hard to know how many there are nationwide, but experts guess 60 to 80. The concept originated in the Netherlands, then spread to England in 2000. In the U.K, the government picks up the tab for them. Here, most cafés are started by grassroots groups and staffed by volunteers. (The Alzheimer’s Association does partner with a few groups.) The first Alzheimer’s café debuted in Santa Fe, N.M., in 2008.
To find a memory café near you or to start one:
- Alzheimer’s Association (Memory Café Locations)
- Memory Café Catalyst Project
- Alzheimer’s and Memory Cafés in the U.S.A.
- Third Age Services: Memory Cafés
They’re a great idea, but one question: what’s with the word “café?” I recently wrote about a new trend called death cafés. They are places where people grab a cup of tea or a sweet and talk about the mostly taboo topic of you-know-what. Stayed tuned for the next kind of café. I’m on it already.
Also of Interest
- The BRAIN Initiative: 5 Things to Noodle
- Romance Lives On, Despite Alzheimer’s
- Join AARP: Savings, resources and news for your well-being
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