Paying for Home- and Community-Based Services: Lessons From Oregon

Many older adults need services to stay in their homes or in community-based settings. Getting help with shopping, meal preparation, transportation, medication management, bathing, dressing or mobility can extend community living. But Medicare and private health insurance do not pay for these types of services, and Medicaid (which does) is limited to people with low incomes and almost no savings. As a result, most people pay for these services out of their own pockets. The Symposium Even people who can …

Caring for Papa

When their grandfather’s health declined, Christina and her brother, Michael, stepped in to care for their “Papa.” Together they did everything he needed to stay at home, where he wanted to be. Christina shared: “Most of us don’t consider ourselves formal caregivers; we are just taking care of our family. But what we did know is that taking care of Papa was hard, stressful and confusing. We didn’t know what services were available or how to screen providers. And we …

A Family Caregiver Thanksgiving Story: In Rehab

My pop was fond of responding to any “How are you?” inquiry like this: “I’ve never been better in my life!” My mom shared her wisdom when sending me off to grade school: “Elaine, never let anyone think you aren’t having the best day of your life!” I was raised with the power of positive thinking. And through the years, I was consistently inspired by the spirit, humor and resilience my parents demonstrated throughout a lifetime of challenges. One time, …

I Heart Caregivers

As we enter National Family Caregivers Month, I think back to the time I spent as a caregiver to my mom.  For 12 years I was by her side, through diabetes, congestive heart failure, hospitalizations and more — all while juggling my job and raising my kids. It wasn’t always easy, but I wouldn’t have had it any other way. My experience is just one of the countless untold stories from family caregivers across the country. Today, more than 42 …

Nurses Are Lifesavers

My pop, like many family caregivers, used his ingenuity to solve problems. This time, Pop was trying to figure out an easier way to help my mom out of her wheelchair and into bed. Pop was in his 90s, and anything would make it easier on him. So he rigged up a ramp from cinder blocks and particle board. If he could get her chair going at the right speed and right angle, he could run up the ramp and …

Breaking News: N.J. Legislature Passes CARE Act to Support Family Caregivers

BREAKING UPDATE 11/13/14:  Gov. Chris Christie signed the CARE Act into Law.     Just minutes ago, the New Jersey Assembly passed the Caregiver Advise, Record, Enable (CARE) Act. Already approved by the Senate without a single no vote, the CARE Act now heads to Gov. Chris Christie for his signature. Once enacted, it will support the 1.75 million family caregivers in New Jersey as their loved ones go into the hospital and as they transition home. What is the CARE Act? The …