Intergenerational Selfies With a Purpose

A selfie can’t change the world — or can it, just a little? That’s the hope behind two social media campaigns right now: Grantmakers in Aging’s #GenTogether and Age UK’s #NotByMySelfie. My heart did a dance when I spotted them on Twitter this month. They’re certainly not the first nonprofits to mobilize people via personal snaps, but they’re the first I’ve seen to honor intergenerational connection this way. They’re calling for friends, families, neighbors, coworkers and caregivers of all ages …

Glen Campbell’s Last Film an Inspiration to Caregivers

We’ve known singer, guitar player and actor Glen Campbell as a superstar for almost six decades, but it’s his last film that may be his most precious gift — especially to those of us watching Alzheimer’s steal away our loved ones. In I’ll Be Me, Campbell shares not only his talents but also his struggle with Alzheimer’s as it eats away at his memory, his ability to reason and all the things that make him unique. The film documents Campbell’s last …

Love and Alzheimer’s: It’s Complicated

Valentine’s Day is coming up, but I have to admit, Alzheimer’s complicates loving someone who is struggling to cope with the confusion of an ever-changing world. Dad has always been very affectionate and supportive to me. When I was a child, he was my role model and comforter. When I became an adult, he showed his love by asking about my work or my car. He would even send me Valentine’s Day chocolates every year. Now he often expresses anger and frustration toward …

Study: Suffering Increasing at the End of Life

It’s been more than 15 years since the Institute of Medicine released its seminal 1997 report detailing the suffering many Americans experience at the end of life and offering sweeping recommendations on how to improve care. So has dying in America gotten any less painful? Despite efforts to build hospice and palliative-care programs across the country, the answer seems to be a resounding no. The number of Americans experiencing pain in the last year of life actually increased by nearly …

The CARE Act: A Commonsense Solution to Help Family Caregivers

Alice from Texas cared for her husband, Cort, after he suffered a severe stroke.  She recently shared her story on I Heart Caregivers, writing, “After a week in intensive care, three weeks in a rehab facility and a month in a nursing home, I brought my husband home to begin his care. He came home with a severe wound on his back. I learned wound care, changing catheters, all the duties of a home healthcare nurse. Since then, he has …

Losing Myself in Caregiving

After I moved across the country to care for my parents, more than five years ago, I put my heart and soul — to say nothing of my energy and time — into my role as a caregiver. As many of you know, it’s an all-consuming responsibility, one that can soon overwhelm your sense of self. For me, I felt my identity slipping away. I feared I’d lost myself in caregiving. So I thought about who I really am and why …