Study: Suffering Increasing at the End of Life

It’s been more than 15 years since the Institute of Medicine released its seminal 1997 report detailing the suffering many Americans experience at the end of life and offering sweeping recommendations on how to improve care. So has dying in America gotten any less painful? Despite efforts to build hospice and palliative-care programs across the country, the answer seems to be a resounding no. The number of Americans experiencing pain in the last year of life actually increased by nearly …

The CARE Act: A Commonsense Solution to Help Family Caregivers

Alice from Texas cared for her husband, Cort, after he suffered a severe stroke.  She recently shared her story on I Heart Caregivers, writing, “After a week in intensive care, three weeks in a rehab facility and a month in a nursing home, I brought my husband home to begin his care. He came home with a severe wound on his back. I learned wound care, changing catheters, all the duties of a home healthcare nurse. Since then, he has …

Losing Myself in Caregiving

After I moved across the country to care for my parents, more than five years ago, I put my heart and soul — to say nothing of my energy and time — into my role as a caregiver. As many of you know, it’s an all-consuming responsibility, one that can soon overwhelm your sense of self. For me, I felt my identity slipping away. I feared I’d lost myself in caregiving. So I thought about who I really am and why …

Across the States: Fighting for You in 2015

This month, state legislatures throughout the nation are convening to mark the inauguration of new governors, state legislators and other state leaders. We will then begin to hear State of the State messages from governors that detail the challenges, opportunities and priorities they have defined for the year ahead. At AARP, we’ve also set our priorities for 2015 with a state advocacy agenda that highlights how we will continue to fight for you in every state, the District of Columbia, Puerto …

A Caregiver’s Precious Last Gift From Her Big Sister

She carried me when I was tired. She protected me when other kids were picking on me. She introduced me to new experiences and music, from dancing to the Beatles in 1964 in our West Lafayette, Ind., living room to my first Grateful Dead concert in 1968 — where she lifted me to the stage so I could dance with the band — to the music of Keith Jarrett in 1982. When I entered those tumultuous teenage and young adult years …

5 Holiday Tips From Caregivers for Caregivers

The holidays can be a time of family, fun and joy — but for family caregivers, these special occasions often include added stress as they continue helping their mothers, fathers, husbands, wives and other loved ones. We recently shared some holiday tips for family caregivers on the AARP Advocates Facebook page — and many of our friends chimed in with their own suggestions. Here’s what they had to say: 1. Keep it simple. Kate: “Do not overbook your schedule.” Dianne: …