Consumer Voices Matter: Meaningful Engagement of Consumers and Caregivers in Long-Term Care

Patient-centered care is responsive to the needs and values of the individuals receiving care, and is one aspect of a high-performing, high-quality health care system. The Centers for Medicare & Medicaid Services (CMS) recently issued a final rule that gives Medicaid managed care consumers and their family caregivers a seat at the table by requiring states to include consumer and family caregiver perspectives in the design, implementation and oversight of state-managed long-term services and supports (LTSS) programs. States should view the new …

Fighting for Family Caregivers

At 40 million strong, family caregivers are the backbone of our care system, helping parents, spouses and other loved ones live independently at home — where they want to be. The unpaid care they provide, valued at about $470 billion annually, can often be a 24/7 commitment. They take on tasks that can be stressful, exhausting and overwhelming. Many also juggle full- or part-time jobs, and some are still raising their families. As family caregivers face physical, emotional and financial …

AARP Volunteers From Every State Head to Capitol Hill to Push Robust Agenda on Family Caregiving, Social Security

Today, volunteers and staff from every state, Washington, D.C., Puerto Rico and the U.S. Virgin Islands have come to Washington to advocate on behalf of AARP members and all older Americans on the crucial issues of family caregiving and Social Security. While meeting with members of Congress, these volunteers and staff will carry crucial asks:   AARP advocates will ask members of Congress to support two pieces of bipartisan legislation to help family caregivers, the Recognize, Assist, Include, Support, and …

Eldercare Primarily Concerns Older Workers and Their Employers, Right? Think Again

For employers big and small, the need to support workers who also provide unpaid care for a family member is a growing reality. Most family caregivers today — or an estimated 23.9 million workers — work at a paying job on top of their caregiving responsibilities. Yet today, care for a relative with a serious illness or disability takes place in a very different world from that of our grandparents’ generation.  To start, the role of family caregivers has greatly …

Family Caregivers Say ‘Thank You, Nurses’

During National Nurses Week (May 6–12, 2016), we celebrate nurses. I say, let’s celebrate nurses every day! Across the country, these hardworking professionals help us get and stay well, and provide comfort and care when we’re at our most vulnerable. In my experience, they do this with incredible skill as well as a smile. When caring for my mom and pop, nurses were lifesavers for my parents and me. One in particular, Nurse Sue, became more like a member of …

One Caregiver’s Regret: How the CARE Act Could Have Helped

In August of 2014, Mary’s mother Eartha was discharged from the hospital after a short stay — an event that would have lasting consequences. When Mary arrived at the hospital that day, Eartha was ready to go, dressed and sitting in a wheelchair with a list of medications on her lap.  Never given instructions on her mother’s new prescriptions, Mary missed out on a key piece of information — one of the medications was only meant to be given for …