Caring for Yourself and Your Loved One

Becoming a caregiver can be overwhelming, especially when it happens suddenly and you are not fully prepared to embark on, unbeknownst to you, your caregiver journey. It can be like becoming a new parent. You are now responsible for ensuring that your loved one gets the best care and advice. You hear other people’s stories of how they did it, read lots of how-to manuals, attend workshops and seminars, but you truly don’t know until you experience it. The impact …

Family Caregiving: The Hardest Thing I Ever Had To Do

“Taking care of my mother with Alzheimer’s was the hardest thing I ever had to do in my life. When I was in the U.S Navy, I had the 2nd most dangerous job in the world by working the flight deck of an aircraft carrier. Yes, it was harder than that.” – Ray A new report by the National Academies of Sciences, Engineering, and Medicine—Families Caring for an Aging America—examines existing support for family caregivers like Ray, and recommends ways …

Changing the Way We Look at Families Caring for an Aging America

While family caregiving is an intensely personal issue, it is critically important to the well-being of our aging U.S. population, families and society — and must be taken seriously as a critical issue of public policy. That’s according to a recent report on family caregiving for older adults from the National Academies of Sciences, Engineering, and Medicine. The report, developed and authored by a 19-member expert committee of which I was a member, highlights the shortcoming of both the health …

Family Caregiving: A Great Labor of Love

I want to take a minute to recognize the 40 million Americans who perform a great labor of love every day: family caregivers. Thanks to their tireless efforts, parents, spouses, and other loved ones are able to remain at home — where they want to be. Day after day, these unsung heroes take on huge responsibilities that can be overwhelming, stressful and exhausting. In addition to this labor of love, many juggle full or part-time jobs — like Gayle, Nacy …

Caregiving Across State Lines: 45+ States Pass Law to Help

Imagine you care for your 90-year-old mother with dementia. She lives with you in your Georgia home. You help her with bathing and dressing, drive her to the doctor, cook her meals, manage her medications and do anything else she needs. Last year you were appointed her legal guardian by the state of Georgia to help manage her finances and make decisions for her about health care and more. Your mother needs a special heart procedure, only available in a …

Consumer Voices Matter: Meaningful Engagement of Consumers and Caregivers in Long-Term Care

Patient-centered care is responsive to the needs and values of the individuals receiving care, and is one aspect of a high-performing, high-quality health care system. The Centers for Medicare & Medicaid Services (CMS) recently issued a final rule that gives Medicaid managed care consumers and their family caregivers a seat at the table by requiring states to include consumer and family caregiver perspectives in the design, implementation and oversight of state-managed long-term services and supports (LTSS) programs. States should view the new …