Preserving Access to Home- and Community-Based Services Through Community First Choice

An important AARP study shows that an overwhelming majority of people would like to remain in their homes and communities for as long as possible. Personal care services, such as assistance with bathing, eating and dressing, are critically important to helping older adults and people with disabilities of all ages live independently and avoid costly nursing facility placements. Medicaid plays a critical role in providing this support. It is the largest public payer of long-term services and supports (LTSS), including …

Capping Medicaid Funding Could Hurt Millions of People With Disabilities and Poor Seniors

Medicaid is the country’s largest public health insurance program, providing access to needed health care and long-term services and supports  (LTSS) to millions of low-income Americans, including more than 17 million children with disabilities, adults with disabilities, and poor seniors. Right now, states and the federal government share the cost of Medicaid in a way that guarantees services to all who are eligible. Under this arrangement, federal funding increases (or decreases) in response to changes in enrollment, service costs and …

Are We There Yet? Efforts to Balance Long-Term Services and Supports

“Marvin L. Dawkins was a 53-year-old AT&T manager when a blocked blood vessel left him paralyzed. It took 11 years, one lawsuit, repeated tangles over Medicaid rules — and a chance meeting on a church van — before he could extract himself from a nursing home outside Baltimore. Now he lives in an apartment with the assistance of an aide, gets out for a job that he says gives him purpose, socializes with new friends and old ones, and revels …

Fighting for Family Caregivers

At 40 million strong, family caregivers are the backbone of our care system, helping parents, spouses and other loved ones live independently at home — where they want to be. The unpaid care they provide, valued at about $470 billion annually, can often be a 24/7 commitment. They take on tasks that can be stressful, exhausting and overwhelming. Many also juggle full- or part-time jobs, and some are still raising their families. As family caregivers face physical, emotional and financial …

28 States + 34 Bills Passed = More Support for 22 Million Family Caregivers

Every day we hear from family caregivers like Marcus, Tish and Iris about the challenges they face helping their older loved ones remain at home — where they want to be. Marcus: “Having a full-time job and coping with Mom’s illness has got to be one of the most frustrating things I’ve ever had to do. She is my light and my darkness all at the same time.” Tish: “I hope we have my mom for many more years, but …

Does your state support services for older Americans, family caregivers?

Family caregivers provide an estimated $450 billion in unpaid care annually, helping their older parents, spouses and others to live independently at home—and out of costly institutional care, often paid for by Medicaid. But now, in a number of states as governors and legislatures negotiate their state’s annual budgets, critical assistance on which family caregivers and their loved ones rely on is at risk. Proposed cuts to home care, adult day services, meals-on-wheels and more have real consequences for families. …