The Fierce Urgency of Now: How $880 Billion in Cuts to Medicaid Could Hurt Us All

If you have protection against future catastrophic out-of-pocket costs for basic life functions, consider yourself lucky. The vast majority of people in the United States don’t. Yet the reality is that there’s a 52 percent chance that someone turning 65 today might develop a severe disability requiring long-term services and supports (LTSS)—that is, help with such functions as eating, bathing, dressing and toileting. For more extensive care, the cost can surpass $250,000 for those over the age of 65 — …

Preserving Access to Home- and Community-Based Services Through Community First Choice

An important AARP study shows that an overwhelming majority of people would like to remain in their homes and communities for as long as possible. Personal care services, such as assistance with bathing, eating and dressing, are critically important to helping older adults and people with disabilities of all ages live independently and avoid costly nursing facility placements. Medicaid plays a critical role in providing this support. It is the largest public payer of long-term services and supports (LTSS), including …

Nursing Facility Transitions: A Cornerstone for Balancing Long-Term Services and Supports

When Abbie was first admitted to a nursing facility in Henderson, Nev., in December 2012, she was told she would probably be there for the rest of her life. For Abbie, who was 76 at the time, that was not an option. “That place was not my cup of tea,” she said. “I didn’t belong there.” About 1.5 million Americans currently live in a nursing facility. Like Abbie, whose story was told first by Nevada’s Money Follows the Person (MFP) …

Are We There Yet? Efforts to Balance Long-Term Services and Supports

“Marvin L. Dawkins was a 53-year-old AT&T manager when a blocked blood vessel left him paralyzed. It took 11 years, one lawsuit, repeated tangles over Medicaid rules — and a chance meeting on a church van — before he could extract himself from a nursing home outside Baltimore. Now he lives in an apartment with the assistance of an aide, gets out for a job that he says gives him purpose, socializes with new friends and old ones, and revels …

Measuring Quality in Long-Term Services and Supports: National Core Indicators — Aging and Disabilities

Millions of older people and adults with disabilities receive services in their own homes and communities, but little is known about their quality of care or quality of life. However, an exciting and relatively new assessment called the National Core Indicators — Aging and Disabilities (NCI-AD) is emerging that could begin to fill this data void. The Consumer Experience NCI-AD is a consumer-experience survey that includes a background survey, which gathers data about the consumer from agency records. It also contains …

Thank You, Family Caregivers, for Your Labor of Love

En español | This Labor Day, I want to take a moment to recognize the 40 million Americans who perform a great labor of love every day caring for older parents, spouses and other loved ones.  While they wouldn’t have it any other way, family caregivers often have a big job. Some are on call 24-7 and often they can’t even take a break. “One day my mom became ill and my life changed in a moment, I knew I …