The CARE Act: Helping Family Caregivers From Hospital to Home

In preparing Mom’s medication, my 90-year-old Pop would fill a syringe using the light of the kitchen window to see if the dosage was correct. He set up the nebulizer on a table with handwritten step-by-step instructions to remind him how to operate it. Today, millions of family caregivers like Pop perform complex medical tasks that at one time would have been administered only by medical professionals. 21 states and counting Two years ago, AARP proposed the idea of the …

Can Your Nurse Prescribe Medication?

As many family caregivers know, getting our parents, spouses or other loved ones from one place to another can sometimes be a challenge, especially if they have impaired mobility. When I was caring for my parents, taking Mom — who was confined to a wheelchair — to see the doctor was an all-day ordeal, even though his office was only a short distance away. We had to wait for the special transport van to come, wait at the doctor’s, and …

Teenage Caregiver Helped Father as He Battled Cancer

This year I had the honor of meeting Kyllian, a young New Jerseyan who, as a teenager, was a caregiver for her father. Throughout his battle with cancer, she would come home after high school every day to care for him. Her dad lost his battle to cancer a few years ago, but Kyllian’s passionate advocacy for family caregivers burns brightly. She is now in her early 20s, and her youth caregiver group is among the many supporters of the …

Pop’s Critical Role as Caregiver During Mom’s Brain Surgery

This weekend we all had the opportunity to celebrate our fathers. As I remembered my Pop — a funny, hardworking, unselfish man — I thought about his devotion to my mom, especially during their later lives when he was her primary caregiver. He shouldered huge responsibilities that I think weighed heavily on his mind. I remembered the time, several days before Mom had brain surgery, Pop opened his wallet and handed me a small piece of paper. “It’s the anesthesia …

Thank You, Nurses, for ALL You Do

As National Nurses Week concludes, I want to take a moment and thank all nurses — past, present, and future — for all that you do. I know firsthand the importance of nurses not only to patients, but to their families. During the 15 years I cared for my parents, nurses made a huge difference in our lives. There’s no doubt, caregiving takes a team, and so often nurses were a part of my family’s team. I also know that …

39 States and Counting: Caregiving Across State Lines

I was a long-distance caregiver for my parents for nearly 15 years. Through illness, surgery and rehabilitation, I helped them stay out of institutional care, like a nursing home, and instead remain at home – where they wanted to be. During this time, I purchased my house on Cape Cod in Massachusetts with my parents in mind – hoping that Mom and Pop could come to the Cape from New York, enjoy time by the seashore, and get some rest and …