Junette, una cuidadora familiar de Arkansas, comprende muy bien los desafíos de proveer los mejores cuidados posibles para su hija adulta, Colleen. En el 2007, Colleen sufrió lesiones graves en un accidente de choque y fuga. Desde entonces, Junette, su esposo, Johnny, y el esposo de Colleen, Mark, han hecho todo lo posible por cuidar a Colleen en casa. Cuando se les preguntó si Colleen debería vivir en un hogar para adultos discapacitados, su respuesta fue "¡Absolutamente no!". Ahora, Junette y Johnny ayudan con las responsabilidades para cuidar a Colleen, mientras que Mark actúa como su tutor. La tutela de adultos es un proceso en el que un tribunal estatal nombra a una persona para que se encargue del bienestar, y posiblemente las finanzas, de otra persona que no puede cuidar de sí misma. Los tutores pueden ser familiares, amigos o profesionales no relacionados que sean nombrados por un juez. Hemos visto en todo el país un incremento en la acción para mejorar las leyes, prácticas y procedimientos obsoletos sobre la tutela. Los legisladores estatales, jueces y defensores de la familia, así como otras personas interesadas, están trabajando para:
Junette, a family caregiver from Arkansas, understands the challenges of providing the best possible care for her adult daughter, Colleen. In 2007, Colleen was injured severely in a hit-and-run accident. Since that time, Junette, her husband, Johnny, and Colleen’s husband, Mark, have done everything possible to care for Colleen at home. They said, "Absolutely not!" when asked if Colleen should be placed in a nursing home. Now, Junette and Johnny help with caregiving responsibilities for Colleen, while Mark serves as her guardian. Adult guardianship is a process by which a state court appoints an individual to care for the well-being, and possibly finances, of another person who is unable to care for him or herself. Guardians can be family members, friends, or non-related professionals appointed by a judge. Across the country, we’ve seen an uptick in action to improve outdated guardianship laws, procedures, and practices. State legislators, judges, family advocates, and other stakeholders are working to:
Simmering issues important to all older Americans and their families, like health and financial security, may escalate to a full boil in many state Capitols in 2018. Facing these challenges and opportunities head-on, AARP is already exhaustively at work throughout the country, fighting for the issues that matter and driving an innovative agenda focused on commonsense solutions without the clutter of partisanship. Last year, AARP State Offices achieved huge successes, including new supports for family caregivers, greater access to home and community based services, and new ways to save for retirement. This year, we will continue to find ways to better enable more people to live and age as they choose. Among our top priorities: Supporting Family CaregiversAbout 40 million family caregivers represent the backbone of our country’s care system, providing hours of unpaid care to their loved ones every day. Over the past two years, AARP state offices have worked with state legislators and governors to enact more than 150 new laws that support these unsung heroes. In 2018, AARP will continue to support family caregivers and their loved ones by advancing laws and policies that:
Recent news articles spotlight egregious acts conducted by court-appointed guardians against the older individuals entrusted in their care. These reports highlight some of the worst situations occurring within a system that requires expedited improvement, now.
As I flew into Biloxi, the storm clouds parted and a rainbow appeared. Maybe it was a sign that good things are ahead for Mississippi family caregivers and the parents, spouses and other loved ones they care for.
En español | This Labor Day, I want to take a moment to recognize the 40 million Americans who perform a great labor of love every day caring for older parents, spouses and other loved ones. While they wouldn’t have it any other way, family caregivers often have a big job. Some are on call 24-7 and often they can’t even take a break.
Every day we hear from family caregivers like Marcus, Tish and Iris about the challenges they face helping their older loved ones remain at home — where they want to be.
Let me start by saying, thank you State Sen. Debbie Smith (Nev.) for your leadership, courage and determination to fight for family caregivers and the older parents, spouses and other loved ones they help to remain in their homes.
Imagine you’re a caregiver for your mom, who lives in Oregon. You, however, live in North Carolina. As your mother’s health declines, you become her legal guardian in Oregon, making decisions about her property, medical care and living arrangements. The process of becoming your mom’s legal guardian was not only time consuming but costly. Now your mother wants to move to North Carolina to be closer to you. North Carolina won’t recognize a guardianship order from Oregon, so you will now have to repeat the extensive and often costly process again in North Carolina.
Cyndie’s dad suffered a stroke seven years ago. She moved him from Pennsylvania to her home in Wisconsin so she could take care of him. It isn’t always an easy road, but Cyndie is thankful for the precious time she gets to spend with her father. Francesca and her family moved to Florida to care for her aging mother, leaving their home of 27 years in Connecticut. Her role as caregiver grows each month.
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