Feeling Alone as a Caregiver? Build a Backup Team

One of the most common questions I get from overwhelmed caregivers is, “How can I get my family members to help me more with caregiving?” My advice: We can make ourselves crazy trying to change other people. We need to accept what they will and will not do, and think more broadly about who else can fill the gaps. As a primary caregiver for my parents and other family members, I’ve found that I need different kinds of assistance. Some …

Older Adults and People With Disabilities Want Choice and Control

We all like to have choices. Being able to decide where we live and work, what we eat and how we spend our leisure time all enhance life satisfaction. Having a disability doesn’t diminish the desire for choice. But unfortunately, people with disabilities often lose control over how services are provided when they depend on Medicaid for home- and community-based services (HCBS), such as meal preparation or help with bathing and dressing. It doesn’t have to be this way. Participant-directed …