Self-direction allows individuals to have greater choice over the services and supports they receive, including hiring and managing their own paid caregivers and purchasing items to live more independently at home.
These actions can enable relationships between family caregivers and long-term facility residents during the spread of COVID-19.
The value of unpaid family care is huge. Although policy change is underway, more robust action is needed to support caregiving families.
To kick-off National Family Caregivers and Alzheimer's Awareness Month on November 1, AARP's Family and Caregiving Expert Amy Goyer appeared on NBC's TODAY Show with hosts Hoda Kotb and Maria Shriver to discuss the challenges of caring for someone with dementia. More than 16 million Americans provide unpaid care for people with Alzheimer's or other dementias. Goyer talked about the importance of planning, and offered tips on how caregivers can take care of themselves and deal with caregiver guilt. TODAY also posted a link to AARP's resources for caregivers on the show's website.
En español | When people talk about family caregivers, Millennials are not always part of the conversation. Yet as the report Caregiving in the U.S. 2015 found, close to 1 in 4 family caregivers (24%) are Millennials.
In addition to advocating for older Americans in the halls of Congress, AARP staff and volunteers are working on the ground in all 50 states, Washington, DC, Puerto Rico and the U.S. Virgin Islands to make a difference in people’s lives through advocacy. This year, we have helped enact state policies to support more than 30 million family caregivers and provide thousands of workers with a new way to save for retirement.
Being a family caregiver — that is, providing unpaid care to a parent, spouse, friend or other adult loved one — is hard work. It can also be rewarding work. The struggles, frustrations and stress associated with this caregiving journey cross gender lines. While the “typical” family caregiver is a 49-year-old woman who takes care of a relative, 4 out of 10 caregivers are men. [i]
Families and close friends are the most important source of support to older people and adults with a chronic, disabling or serious health condition. They already take personal responsibility for providing increasingly complex care to the tune of $470 billion (as of 2013). That figure, representing family caregivers’ unpaid contribution in dollars, roughly equals the combined sales of the four largest U.S. tech companies (Apple, IBM, Hewlett Packard and Microsoft, $469 billion) in 2013.
For family caregivers, the holidays can be a time of added stress and chaos, but they can also be a time of joy — and humor. Catherine, a family caregiver for her sister Lisa, shares:
Across all 50 states, Washington, D.C., Puerto Rico and the U.S. Virgin Islands, AARP is fighting to help families address important day-to-day issues — from caring for a loved one to retiring with confidence. In fact, this year alone we’ve successfully fought to bring more support to millions of family caregivers and help millions of workers save for retirement.
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