Junette, una cuidadora familiar de Arkansas, comprende muy bien los desafíos de proveer los mejores cuidados posibles para su hija adulta, Colleen. En el 2007, Colleen sufrió lesiones graves en un accidente de choque y fuga. Desde entonces, Junette, su esposo, Johnny, y el esposo de Colleen, Mark, han hecho todo lo posible por cuidar a Colleen en casa. Cuando se les preguntó si Colleen debería vivir en un hogar para adultos discapacitados, su respuesta fue "¡Absolutamente no!". Ahora, Junette y Johnny ayudan con las responsabilidades para cuidar a Colleen, mientras que Mark actúa como su tutor. La tutela de adultos es un proceso en el que un tribunal estatal nombra a una persona para que se encargue del bienestar, y posiblemente las finanzas, de otra persona que no puede cuidar de sí misma. Los tutores pueden ser familiares, amigos o profesionales no relacionados que sean nombrados por un juez. Hemos visto en todo el país un incremento en la acción para mejorar las leyes, prácticas y procedimientos obsoletos sobre la tutela. Los legisladores estatales, jueces y defensores de la familia, así como otras personas interesadas, están trabajando para:
Junette, a family caregiver from Arkansas, understands the challenges of providing the best possible care for her adult daughter, Colleen. In 2007, Colleen was injured severely in a hit-and-run accident. Since that time, Junette, her husband, Johnny, and Colleen’s husband, Mark, have done everything possible to care for Colleen at home. They said, "Absolutely not!" when asked if Colleen should be placed in a nursing home. Now, Junette and Johnny help with caregiving responsibilities for Colleen, while Mark serves as her guardian. Adult guardianship is a process by which a state court appoints an individual to care for the well-being, and possibly finances, of another person who is unable to care for him or herself. Guardians can be family members, friends, or non-related professionals appointed by a judge. Across the country, we’ve seen an uptick in action to improve outdated guardianship laws, procedures, and practices. State legislators, judges, family advocates, and other stakeholders are working to:
Cyndie’s dad suffered a stroke seven years ago. She moved him from Pennsylvania to her home in Wisconsin so she could take care of him. It isn’t always an easy road, but Cyndie is thankful for the precious time she gets to spend with her father. Francesca and her family moved to Florida to care for her aging mother, leaving their home of 27 years in Connecticut. Her role as caregiver grows each month.
As we enter National Family Caregivers Month, I think back to the time I spent as a caregiver to my mom. For 12 years I was by her side, through diabetes, congestive heart failure, hospitalizations and more — all while juggling my job and raising my kids. It wasn’t always easy, but I wouldn’t have had it any other way.
I was a long-distance caregiver for my parents for nearly 15 years. Through illness, surgery and rehabilitation, I helped them stay out of institutional care, like a nursing home, and instead remain at home - where they wanted to be. During this time, I purchased my house on Cape Cod in Massachusetts with my parents in mind - hoping that Mom and Pop could come to the Cape from New York, enjoy time by the seashore, and get some rest and relaxation. Finding a home with a ground-floor bedroom and bath was at the top of my list, so my mom could navigate throughout the house in her wheelchair.
Nobody knew much about Roger. His niece had dropped him off at the nursing home one day, saying there was a family emergency. Could they keep him overnight?
I am my husband's guardian. I was appointed by the Vermont probate court after a court hearing over 13 years ago. He had suffered a severe stroke, was disabled and could no longer manage his affairs. Although he had lost his speech, he developed his own sign language and could make his wishes known, at least to those of us who were close to him. And he clearly wanted to go home, and to make sure, he celebrated leaving the Boston rehabilitation hospital and gave exact directions to his driver (his son-in-law) during the two-hour drive back to Vermont.
Meet Lynn Achter, a Wyoming resident, who was granted guardianship of her brother in Oregon after he suffered a brain injury in a motorcycle accident. From a thousand miles away, she managed his money, made medical decisions, and coordinated the resources and services he needed.
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