home and community based care

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Caroline, madre de dos y maestra de preescolar, se convirtió inesperadamente en cuidadora familiar de su padre después de que este sufrió un derrame cerebral grave. Su padre, Tom, ya fallecido, perdió el uso del lado derecho de su cuerpo y su capacidad de hablar. Tras múltiples cirugías y tratamientos de rehabilitación, pudo vivir en su hogar con la ayuda de enfermeras. Pero Caroline era quien le proveía los cuidados diarios, como supervisar las citas médicas y encargarse de ciertas responsabilidades de enfermería, como administrar sus medicamentos. "Me convertí en la persona en la que mi padre podía confiar más que nadie en el mundo", comentó Caroline. "Llegué a ser su lugar seguro y su mejor amiga". En comunidades de todo Estados Unidos, los cuidadores familiares como Caroline atienden a sus padres, cónyuges y otros seres queridos, ayudándolos para que puedan permanecer en sus hogares, donde quieren estar. Sus tareas no son fáciles, pero las realizan por amor y compromiso. Es por eso que AARP está luchando por los derechos de los cuidadores familiares, y de sus seres queridos, en todos los estados. En el 2018, AARP impulsó políticas nuevas para conseguir más ayuda en el hogar, flexibilidad en el lugar de empleo, capacitación, alivio y más, lo que beneficiará a más de 30 millones de cuidadores familiares. Estos son algunos de los puntos destacados:
SQ_CG_MakingProgress
Caroline is a mother of two children and a preschool teacher who unexpectedly became a family caregiver for her father after he suffered a major stroke. Her father, Tom, now deceased, lost the use of his right side and his ability to speak. Multiple surgeries and rehabilitation treatments later, he was able to live at home with the help of nurses. But it was up to Caroline to provide daily care, such as overseeing appointments and handling certain nursing responsibilities, like managing his medications. “I became the person my father could rely on more than anyone in the world,” Caroline said. “I became his safe place and his best friend.” In communities across the country, family caregivers like Caroline are caring for older parents, spouses and other loved ones, helping them to remain at home – where they want to be. Their tasks are done out of love and commitment, but are not easy. That’s why AARP is fighting for family caregivers and their loved ones in every state. In 2018, AARP advanced new policies to provide more help at home, flexibility at work, training, relief and more, which will benefit over 30 million family caregivers. Here are a couple highlights:
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At 40 million strong, family caregivers are the backbone of our care system, helping parents, spouses and other loved ones live independently at home — where they want to be.
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Every day we hear from family caregivers like Marcus, Tish and Iris about the challenges they face helping their older loved ones remain at home — where they want to be.
home care vs nursing home
Family caregivers provide an estimated $450 billion in unpaid care annually, helping their older parents, spouses and others to live independently at home—and out of costly institutional care, often paid for by Medicaid. But now, in a number of states as governors and legislatures negotiate their state’s annual budgets, critical assistance on which family caregivers and their loved ones rely on is at risk. Proposed cuts to home care, adult day services, meals-on-wheels and more have real consequences for families.  Take Barbara and Steven.
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