Caregivers Share Coping Ideas at Life@50 Event

(Left to right): Amy Goyer, Sally Abrahms and Carol Levine.

I'm jazzed about AARP's annual Life@50+ member event going on this week in New Orleans. Attendees can exercise, listen to all kinds of music, hear commentators  James Carville and Mary Matalin argue politics, and take in sessions on such meaningful topics as finance, work, scam artists, social media and happiness.

I like to think the biggest attraction, at least so far, has been today's session on caregiving - and not just because I was on the panel! The group came up with several strategies for improving the lives of our loved ones, and some might give you ideas.

On the panel with me, a long-distance caregiver of 12 years (first for my father, then my mother and now my mother-in-law who is about to be 93) were:

Moderator  Amy Goyer, AARP's family expert, whose parents moved in with her just three weeks ago. Goyer's father has dementia and her mother has serious health issues.

Carol Levine, director of the Families and Health Care Project at the United Hospital Fund and an AARP caregiving expert. Levine became a caregiver after she and her husband were in a car accident. It left him with brain damage and quadriplegia. She cared for him at home for 17 years. During that time, her mother, who lived 500 miles away, had metastatic cancer.

Here's my in-the-trenches recap.

Levine's ideas:

  • She and her husband wrote a two-page story of his life before the accident and gave it to people they met who hadn't known him.
  • She hired people (in her case, unemployed actors, but it could have been a volunteer) to read to her husband (sports stories, books).

Goyer's suggestions:

  • When her father gets frustrated or she has something she has to do, Goyer puts on a DVD from her collection of movie musicals and Lawrence Welk shows for her parents.
  • She has her dad do water tai chi, and Goyer is also trained to do it with him. It calms him, helps with his arthritis and requires him to follow directions. Goyer says it also relaxes her.

My ideas:

  • Find something meaningful you can do together. In my mother's case, it was poetry. When I visited and she could no longer see, I'd pull out a famous poem, often by Googling it on my iPhone, and the former English teacher and I would recite the lines together, feeling connected and close.
  • My mother-in-law is all about family, so we bought her a digital photo album and scanned in reams of pictures of her parents, siblings, husband, children and grandchildren. She watches them all day. A friend made a video of her talking about her life. She reminisced about her husband and honeymoon, her working life, what her sons were like growing up and now as adults, and the thrill of attending her grandson's wedding. We set up a DVR machine that she can see from her chair and she has become a great fan of herself!

What have you found works for you with your loved one? I'd love to know, and so would readers.

Follow Sally Abrahms at and on Twitter.

Search AARP Blogs

Related Posts
February 04, 2016 09:00 AM
When Dad was diagnosed with Alzheimer’s disease, I knew he would need all of his senses to help interpret the world around him and balance his changing cognitive abilities. But he has hearing impairment and limited vision (glaucoma plus visual-processing problems associated with Alzheimer’s). Even though there is only so much I can do about the visual issues, I assumed  hearing aids would solve his auditory problems. I was wrong. The good news is that we eventually discovered a surprisingly simple solution.
February 01, 2016 10:00 AM
The phone rang one day when I was at work. It was my mom. “Come right away, Elaine, we need you,” she said. Mom had just driven Pop to the emergency room. I knew Pop must have been very sick, because Mom hadn’t driven a car in years.
January 21, 2016 01:00 PM
I have been both a live-in caregiver and a long-distance caregiver. In fact, currently, I’m really both. My dad lives with me (as do my sister and her two sons at the moment), and I also travel for work, about a week every month. I’ve learned to manage my loved ones’ care no matter where I am. Here are some of my tips for other long-distance caregivers.