Consumer Voices Matter: Meaningful Engagement of Consumers and Caregivers in Long-Term Care

Patient-centered care is responsive to the needs and values of the individuals receiving care, and is one aspect of a high-performing, high-quality health care system. The Centers for Medicare & Medicaid Services (CMS) recently issued a final rule that gives Medicaid managed care consumers and their family caregivers a seat at the table by requiring states to include consumer and family caregiver perspectives in the design, implementation and oversight of state-managed long-term services and supports (LTSS) programs. States should view the new …

Are We There Yet? Efforts to Balance Long-Term Services and Supports

“Marvin L. Dawkins was a 53-year-old AT&T manager when a blocked blood vessel left him paralyzed. It took 11 years, one lawsuit, repeated tangles over Medicaid rules — and a chance meeting on a church van — before he could extract himself from a nursing home outside Baltimore. Now he lives in an apartment with the assistance of an aide, gets out for a job that he says gives him purpose, socializes with new friends and old ones, and revels …

The Most Invisible Family Caregivers

Do you know anyone who supports a family member, neighbor or friend with mental health issues? Chances are you do. But it’s likely you don’t know you do. That’s because people who provide care and support to those with mental health issues are the most invisible of all family caregivers. There are about as many family caregivers of adults with mental illness as there are family caregivers of adults with dementia. Why is that surprising even to us, even though …

Make Your Voice Heard on AARP Policy Positions

Every day, thousands of AARP staff and volunteers bring AARP public policies to life when they fight on behalf of older Americans and their families in all state capitals and Washington, D.C. Yet those vital efforts would not be possible without input from people just like you. AARP policies are set by our all-volunteer Board of Directors, but only after an annual process that begins with listening to the insights and experience of individuals who are 50-plus. As a first …

Notice to Medicare observation patients misses the mark

If you’re one of the roughly 2 million Medicare beneficiaries placed under observation each year, there’s (potentially) good news for you: You may be less vulnerable to sticker shock when you get your medical bill. But Medicare hasn’t gotten the details right just yet. In less than two months, the Notice of Observation Treatment and Implication for Care Eligibility (NOTICE) Act will require hospitals nationwide to notify Medicare observation patients that they are not formally admitted as inpatients and why. …

Is Your Community the Right Fit?

You like where you live. Your community is the perfect fit, you say. Yet will it be the right fit 10, 20, or 30 years from now? Will housing costs become an issue, and will you want different transportation options, closer access to your doctor, or perhaps a grocery store nearby? While it’s possible that your personal preferences may remain the same, priorities evolve through the years. At one time, school quality and proximity to work may have been your …